Donald L. Patrick

(Reading, Writing, Speaking)

CDC Prevention Center: Health Promotion in Older Adults, Sep 30, 1994 to Sep 29, 1998.
Agency for Health Care Policy and Research: Rural Alternative Service Delivery, $250,000, Sep 30, 1994 to Nov 30, 1995.
Centers for Disease Control: Promoting the Health of People with Disabilities, $282,639, Sep 15, 1992 to Sep 14, 1993.
New England Institute for Improvement of Medical Care: Health Status and Health Policy, $20,000, Sep 1, 1990 to Aug 31, 1991.
Centers for Disease Control: Age-Appropriate Measures of Quality of Life and Disability Outcomes Among Children, $200,000, Oct 1, 1996 to Sep 30, 1997.
Pharmacia-Upjohn: Development of User's Manual for World Health Organization Quality of Life Instruments, $23,000, Oct 1, 1996 to Nov 1, 1997.
Picker/Commonwealth Scholars Program: Experience of Families with Proxy Decision-making at End-of-Life, $100,000, Oct 1, 1994 to Aug 31, 1996.
Centers for Disease Control: Quality of Life of Older Adults in Community Settings, $75,000, Oct 1, 1991 to Sep 30, 1992.
Agency for Health Care Policy and Research: Managed Care and Health Outcomes, $2,645,317, May 1, 1995 to Oct 31, 1998.
NCI Fred Hutchinson: 5-a-day Worksite Program to Increase Fruit & Vegetable Consumption, $188,270, May 1, 1993 to Apr 30, 1998.
Agency for Health Care Policy and Research: Quality of Dying and AIDS, $50,000, Jun 1, 1997 to May 31, 1999.
NCI Fred Hutchinson Cancer Research Center: Cancer Prevention Research Program, Jun 1, 1995 to Mar 31, 1999.
NCI Fred Hutchinson: Methodology of Community-Based Evaluation Studies, $718,058, Jun 1, 1995 to Mar 31, 1999.
Centers for Disease Control and Prevention: Promoting Health of People with Disabilities, $1.7 Million, Jun to 1998.
Agency for Health Care Policy and Research: Health Services Research Training Program, $1,310,372, Jul 1, 1994 to Jun 30, 1999.
Novartis: Development of User's Manual for Irritable Bowel Quality of Life Instrument, $10,000, Jan 1, 1997 to May 1, 1997.
COAT Eli Lilly & Company: Quality of Life and Urinary Incontinence, $336,262, Dec 13, 1993 to Jun 30, 1995.
Agency for Health Care Policy and Research: Effectiveness of Treatment Strategies for Low Back Pain, $1,717,163, Aug 1, 1994 to Aug 31, 1997.
VA Medical Center: Advanced Care Planning Workbook: Development and Evaluation, $708,018, Apr 1, 1995 to Mar 31, 1998.
National Institutes of Health: Quality of Life for Adolescents with Craniofacial Conditions, $1.5 Million, 2002 to 2005.
: Improving Physician Skill at Providing End-of-Life Care, $1,952,048, 2002 to 2005.
Eli Lilly & Company: The Family Experience Pilot Study, $178,476, 2001 to 2002.
National Cancer Institute: Biobehavioral Cancer Prevention and Control Training Program, $2,158,621, 2001 to 2004.
CDC: Development of Clinical Tool for Assessing Physical Activity Among Older Adults, $54,104, 2001 to 2002.
Agency for Health Research and Quality: Managed Care and Physician Satisfaction, $99,834, 2001 to 2002.
Centers for Disease Control and Prevention: Mesuring Community Accessiblity for Persons with Disabilities, $65,000, 2000 to 2003.
National Institute for Dental and Craniofacial Research: Quality of Life of Adolescents with Craniofacial Conditions, $250,000, 2000 to 2001.
Eli Lilly & Company: Quality of Life and Depression Among Adolescents: Psychometric Assessment of the Youth Quality of Life Cycle, $72,093, 2000 to 2001.
CDC: Measuring Community Accessibility for Persons with Disabilities, $64,703, 2000 to 2003.
Robert Wood Johnson Foundation: Crossing the Threshold: How Experimental Medical Technology Becomes Standard Care, $64,703, 2000 to 2004.
Robert Wood Johnson Foundation: Measuring Quality of Dying and Death, $250,000, 1999 to 2001.
National Institutes of Health: Improivng Clinician-Family Communication in the ICU, $562,020, 1999 to 2001.
CDC: Extension of Age-Appropriate Measures Among Children, $50,000, 1999 to .
Robert Wood Johnson Foundation: Managed care and Physician-Patient Relationship, $49,054, 1999 to 2000.
National Institutes of Health (NIH): Missoula Demonstration Project Quality of Life's End, $73,321, 1999 to 2001.
Eli Lilly & Company: Quality of Life Among Adolescents with Attention Deficit Hyperactivity Disorder, Clinical Depression, and Physical Disabilities, $200,000, 1998 to .
Robert Wood Johnson Foundation: Ethical Implications of Procedure-Based Rationing, $45,000, 1991 to 1992.

• Patrick DL, Burke LB, Powers JH, Scott JA, Rock EP, Dawisha S, O'Neill R, Kennedy DL (2007) Patient-Reported Outcomes to Support Medical Product Labeling Claims: FDA Perspective., Value in Health, 10 (S2), S125-S137
• Patrick DL, Topolski TD, Edwards TC, Aspinall CL, Kapp-Simon KA, Rumsey NJ, Strauss RP, Thomas CR (2007) Measuring the quality of life of youth with facial differences., Cleft Palate Craniofac J, 44 (5), 538-47
• Patrick DL, Topolski TD, Edwards TC (2006) Toward Individualized Measures of Adolescent Health and Quality of Life., PRO Newsletter, 37, 2-4
• Sirgy MJ, Michalos AC, Easterlin R, Easterlin RA, Patrick DL, Pavot W (2006) The Quality-of-Life (QOL) Research Movement: Past, Present, and Future., Social Indicators Research, 76 (3), 343-446
• Patrick DL, Althof SE, Pryor JL, Rosen R, Rowland DL (2005) Premature Ejaculation: An Observational Study of Men and Their Partners., The Journal of Sexual Medicine., 2 (3), 358-367
• Edwards TC, Patrick DL, Topolski TD (2005) Approaches to craniofacial-specific quality of life assessment in adolescents., Cleft Palate Craniofac J, 42 (1), 19-24
• Kinne S, Patrick DL, Doyle DL (2004) Prevalence of secondary conditions among people with disabilities, Am J Public Health, 94 (4), 443-5
• Patrick DL, Bushnell DM (2004) Performance of two self-report measures for evaluating obesity and weight loss, Obes Res, 12 (1), 48-57
• Patel KK, Veenstra DL (2003) A review of selected patient-generated outcome measures and their application in clinical trials., Value in Health, 6 (5), 595-603
• Edwards, TC, Patrick, DL (2003) Quality of life of adolescents with perceived disabilities., J Pediatr Psychol, 28 (4), 233-41
• Jha A, Patrick DL, MacLehose RF, Doctor JN, Chan L, Dissatisfaction with medical services among Medicare beneficiaries with disabilities, Archives of Physical Medicine and Rehabilitation, 83(10), 1335-41, October 2002
• Belza B, Topolski T, Kinne S, Patrick DL, Ramsey SD, Does adherence make a difference? Results from a community-based aquatic exercise program, Nursing Research, 51(5), 285-91, 2002
• Unutzer J, Patrick DL, Marmon T, Simon GE, Katon WJ (September 2002) Depressive symptoms and mortality in a prospective study of 2,558 older adults, American Journal of Geriatric Psychiatry, 10 (5), 521-30
• Curtis JR, Engelberg RA, Wenrich MD, Nielsen EL, Shannon SE, Treece PD, Tonelli MR, Patrick D, Robins LS, McGrath BB, Rubenfeld GD (September 2002) Studying communication about end-of-life care during the ICU family conference: Development of a framework, Journal of Critical Care, 17 (3), 147-60
• Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I (July 2002) A measure of the quality of dying and death. Initial validation using after-death interviews with family members, Journal of Pain and Symptom Management, 24 (1), 17-31
• Sprangers MA, Moinpour CM, Moynihan TJ, Patrick DL, Revicki DA, Clinical Significance Consensus Meeting Group, Assessing meaningful change in quality of life over time: a users' guide for clinicians, Mayo Clinic Proceedings, 77(6), 561-71, June 2002
• Edwards TC, Huebner CE, Connell FA, Patrick DL (June 2002) Adolescent quality of life, part I: conceptual and measurement model, Journal of Adolescence, 25 (3), 275-86
• Patrick DL, Edwards TC, Topolski TD (June 2002) Adolescent quality of life, part II: initial validation of a new instrument, Journal of Adolescence, 25 (3), 287-300
• Grembowski DE, Cook KS, Patrick DL, Roussel AE, Managed care and the US health care system a social exchange perspective, Social Science & Medicine (1982), 54(8), 1167-80, April 2002
• Grembowski DE, Martin D, Patrick DL, Diehr P, Katon W, Williams B, Engelberg R, Novak L, Dickstein D, Deyo R, Goldberg HI (April 2002) Managed care, access to mental health specialists, and outcomes among primary care patients with depressive symptoms, Journal of General Internal Medicine : Official Journal of the Society for Research and Education in Primary Care Internal Medicine., 17 (4), 258-69
• Cress ME, Kinne S, Patrick DL, Maher E (March 2002) Physical functional performance in persons using a manual wheelchair, Journal of Orthopaedic and Sports Physical Therapy, 32 (3), 104-13
• Herrman H, Patrick D, Diehr P, Martin M, Fleck M, Simon G, Buesching D, Longitudinal investigation of depression outcomes in primary care in six countries: the LIDO study, Psychological Medicine, 32(5), 889-902, 2002
• Niero M, Martin M, Finger T, Lucas R, M衲 I, Wild D, Glauda L, Patrick D, New approach to multicultural item generation in the development of two obesity-specific measures: The Obesity and Weight Loss Quality of Life (OWLQOL) questionnaire and the Weight-Related Symptom Mea, Clinical Therapeutics, 24(4), 690-700, 2002
• Pierson CM, Curtis JR, Patrick D, A qualitative study of patients with advanced AIDS, AIDS Care, 14(5), 587-98, 2002
• Scientific Advisory Committee of the Medical Outcomes Trust, Assessing health status and quality-of-life instruments: Attributes and review criteria, Quality of Life Research, 11(3), 193-205, 2002
• Topolski TD, Patrick DL, Edwards TC, Huebner CE, Connell FA, Mount KK (December 2001) Quality of life and health-risk behaviors among adolescents, The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine, 29 (6), 426-35
• Byock I, Norris K, Curtis JR, Patrick DL (September 2001) Improving end-of-life experience and care in the community: a conceptual framework, Journal of Pain and Symptom Management, 22 (3), 759-72
• Patrick DL, Engelberg RA, Curtis JR (September 2001) Evaluating the quality of dying and death, Journal of Pain and Symptom Management, 22 (3), 717-26
• Diehr P, Patrick DL, Spertus J, Kiefe CI, McDonell M, Fihn SD, Transforming self-rated health and the SF-36 scales to include death and improve interpretability, Medical Care, 39(7), 670-80, July 2001
• Schwartz S, Patrick DL, Yueh B, Quality-of-life outcomes in the evaluation of head and neck cancer treatments, Archives of Otolaryngology -- Head and Neck Surgery, 127(6), 673-8, June 2001
• Ramsey SD, Spencer AC, Topolski TD, Belza B, Patrick DL, Use of alternative therapies by older adults with osteoarthritis, Arthritis and Rheumatism, 45(3), 222-7, June 2001
• Patrick DL, Ramsey SD, Spencer AC, Kinne S, Belza B, Topolski TD, Economic evaluation of aquatic exercise for persons with osteoarthritis, Medical Care, 39(5), 413-24, May 2001
• Beresford SA, Thompson B, Feng Z, Christianson A, McLerran D, Patrick DL, Seattle 5 a Day worksite program to increase fruit and vegetable consumption, Preventive Medicine, 32(3), 230-8, March 2001
• McKenna SP, Doward LC, Kohlmann T, Mercier C, Niero M, Paes M, Patrick D, Ramirez N, Thorsen H, Whalley D (March 2001) International development of the Quality of Life in Depression Scale (QLDS), Journal of Affective Disorders, 63 (1-3), 189-99
• Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD, The family conference as a focus to improve communication about end-of-life care in the intensive care unit: opportunities for improvement, Critical Care Medicine, 29(2 Suppl), N26-33, February 2001
• Curtis J, Patrick D, Caldwell E, Collier A., Abuse of futility, Archives of Internal Medicine, 161(1), 128-30, 2001
• Diehr P, Williamson J, Patrick DL, Bild DE, Burke GL (Jan 2001) Patterns of self-rated health in older adults before and after sentinel health events, Journal of the American Geriatrics Society, 49 (1), 36-44
• Diehr P, Patrick DL (2001) Probabilities of transition among health states for older adults, Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 10 (5), 431-42
• Reiber G, Smith D, Carter J, Fotieo G, Deery H, Sangeorzan J, Lavery L, Pugh J, Bettine P, Assal J, del Aguila M, Diehr P, Patrick D, Boyko E (2001) A comparison of diabetic foot ulcer patients managed in VHA and non-VHA settings, Journal of Rehabilitation Research and Development, 38 (3), 309-17
• Kip K, Cohen F, Cole S, Wilhelmus K, Patrick D, Blair R, Beck R (2001) Recall bias in a prospective cohort study of acute time-varying exposures example from the herpetic eye disease study, Journal of Clinical Epidemiology, 54 (5), 482-7
• Patrick DL, Chiang YP, Measurement of health outcomes in treatment effectiveness evaluations: conceptual and methodological challenges, Medical Care, 38(9 Suppl), II14-25, September 2000
• Patrick DL, Chiang YP, Convening health outcomes methodologists, Medical Care, 38(9 Suppl), II3-6, September 2000
• Patrick D, Chiang YP, Postscript: the remaining questions, Medical Care, 38(9 Suppl), II209-10, September 2000
• Grembowski DE, Diehr P, Novak LC, Roussel AE, Martin DP, Patrick DL, Williams B, Ulrich CM, Measuring the 'managedness' and covered benefits of health plans, Health Services Research, 35(3), 707-34, August 2000
• Ponce RA, Bartell SM, Wong EY, LaFlamme D, Carrington C, Lee RC, Patrick DL, Faustman EM, Bolger M, Use of quality-adjusted life year weights with dose-response models for public health decisions: a case study of the risks and benefits of fish consumption, Risk Analysis : an Official Publication of the Society for Risk Analysis, 20(4), 529-42, August 2000
• Unutzer J, Simon G, Belin TR, Datt M, Katon W, Patrick D (August 2000) Care for depression in HMO patients aged 65 and older, Journal of the American Geriatrics Society, 48 (8), 871-8
• Patrick DL, Kinne S, Engelberg RA, Pearlman RA (August 2000) Functional status and perceived quality of life in adults with and without chronic conditions, Journal of Clinical Epidemiology, 53 (8), 779-85
• Patrick DL, Hurst BC, Hughes J, Further development and testing of the migraine-specific quality of life (MSQOL) measure, Headache, 40(7), 550-60, 2000
• Curtis JR, Patrick DL, Caldwell ES, Collier AC, The attitudes of patients with advanced AIDS toward use of the medical futility rationale in decisions to forego mechanical ventilation [see comments], Archives of Internal Medicine, 160(11), 1597-601, June 2000
• Curtis JR, Patrick DL, Caldwell ES, Collier AC, Why don't patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians [see comments], Archives of Internal Medicine, 160(11), 1690-6, June 2000
• Moinpour CM, Lovato LC, Thompson IM Jr, Ware JE Jr, Ganz PA, Patrick DL, Shumaker SA, Donaldson GW, Ryan A, Coltman CA Jr (May 2000) Profile of men randomized to the prostate cancer prevention trial: baseline health-related quality of life, urinary and sexual functioning, and health behaviors, Journal of Clinical Oncology, 18 (9), 1942-53
• Drossman DA, Patrick DL, Whitehead WE, Toner BB, Diamant NE, Hu Y, Jia H, Bangdiwala SI (April 2000) Further validation of the IBS-QOL: a disease-specific quality-of-life questionnaire, American Journal of Gastroenterology, 95 (4), 999-1007
• Unutzer J, Patrick DL, Diehr P, Simon G, Grembowski D, Katon W, Quality adjusted life years in older adults with depressive symptoms and chronic medical disorders, International Psychogeriatrics, 12(1), 15-33, March 2000
• Doctor J, Chan L, MacLehose R, Patrick D (2000) Weighted health status in the Medicare population: Development of the Weighted Health Index for the Medicare Current Beneficiary Survey (WHIMCBS), Journal of Outcome Measurement, 4 (4), 721-39
• Pearlman RA, Cain KC, Starks H, Cole WG, Uhlmann RF, Patrick DL (2000) Preferences for life-sustaining treatments in advance care planning and surrogate decision making, Journal of Palliative Medicine, 3 (1), 43-54
• Bonomi AE, Patrick DL, Bushnell DM, Martin M (2000) Quality of life measurement: will we ever be satisfied? [comment] [see comments, Journal of Clinical Epidemiology, 53 (1), 19-23
• Bonomi AE, Patrick DL, Bushnell DM, Martin M (2000) Validation of the United States'' version of the World Health Organization Quality of Life \(WHOQOL\) instrument [see comments, Journal of Clinical Epidemiology, 53 (1), 1-12
• Chang JA, Curtis JR, Patrick DL, Raghu G, Assessment of health-related quality of life in patients with interstitial lung disease, Chest, 116(5), 1175-82, November 1999
• Patrick DL, Martin ML, Bushnell DM, Marquis P, Andrejasich CM, Buesching DP, Cultural adaptation of a quality-of-life measure for urinary incontinence, European Urology, 36(5), 427-35, November 1999
• Maher EJ, Kinne S, Patrick DL, 'Finding a good thing': the use of quantitative and qualitative methods to evaluate an exercise class and promote exercise for adults with mobility impairments, Disability and Rehabilitation, 21(9), 438-47, September 1999
• Diehr P, Patrick DL, Burke GL, Williamson J, Survival versus years of healthy life: which is more powerful as a study outcome?, Control Clin Trials, 20(3), 267-79, June 1999
• Kinne S, Patrick DL, Maher EJ, Correlates of exercise maintenance among people with mobility impairments., Disabil Rehabil, 21(1), 15-22, Jan 1999
• Patrick DL, Martin ML, Bushnell DM, Yalcin I, Wagner TH, Buesching DP, Quality of life of women with urinary incontinence: further development of the incontinence quality of life instrument \(I-QOL\)., Urology, 53(1), 71-6, Jan 1999
• Spencer AC, Kinne S, Belza BL, Ramsey S, Patrick DL, Recruiting adults with osteoarthritis into an aquatic exercise class: strategies for a statewide intervention, Arthritis Care and Research, 11(6), 455-62, December 1998
• Diehr P, Patrick DL, Bild DE, Burke GL, Williamson JD (1998) Predicting future years of healthy life for older adults, Journal of Clinical Epidemiology, 51 (4), 343-53
• Patrick DL, Drossman DA, Frederick IO, DiCesare J, Puder KL, Quality of life in persons with irritable bowel syndrome: development and validation of a new measure, Digestive Diseases and Sciences, 43(2), 400-11, 1998
• Patrick DL, Finding health-related quality of life outcomes sensitive to health-care organization and delivery, Medical Care, 35(11 Suppl), NS49-57, November 1997
• Unutzer J, Patrick DL, Simon G, Grembowski D, Walker E, Rutter C, Katon W (28 1997) Depressive symptoms and the cost of health services in HMO patients aged 65 years and older. A 4-year prospective study, JAMA, 277 (20), 1618-23
• Patrick DL, Martin DP, Madden CW, Diehr P, Cheadle A, Skillman SM, Dissatisfaction and disenrollment in a subsidized managed care program, Med Care Res Rev, 54(1), 61-79, 1997
• Diehr P, Madden CW, Cheadle A, Martin DP, Patrick DL, Skillman S (1996) Will uninsured people volunteer for voluntary health insurance? Experience from Washington State, American Journal of Public Health, 86 (4), 529-32
• Wagner TH, Patrick DL, Bavendam TG, Martin ML, Buesching DP, Quality of life of persons with urinary incontinence: development of a new measure, Urology, 47(1), 67-71; discussion 71, 1996
• Patrick DL, Deyo RA, Atlas SJ, Singer DE, Chapin A, Keller RB, Assessing health-related quality of life in patients with sciatica, Spine, 20(17), 1899-908; discussion, 1 1995
• Diehr P, Patrick D, Hedrick S, Rothman M, Grembowski D, Raghunathan TE, Beresford S, Including deaths when measuring health status over time, Medical Care, 33(4 Suppl), AS164-72, 1995
• Deyo RA, Patrick DL, The significance of treatment effects: the clinical perspective, Medical Care, 33(4 Suppl), AS286-91, 1995
• Patrick DL, Beresford SA, Ehreth J, Diehr P, Picciano J, Durham M, Grembowski DE (1995) Interpreting excess mortality in a prevention trial for older adults, International Journal of Epidemiology, 24 Suppl 1, S27-33
• Patrick DL, Cheadle A, Thompson DC, Diehr P, Koepsell T, Kinne S (1994) The validity of self-reported smoking: a review and meta-analysis, American Journal of Public Health, 84 (7), 1086-93